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Tag: swallow

Hard to Swallow

Posted on: April 19, 2022 Last updated on: April 19, 2022 Written by: Brian
Are you having a hard time swallowing? I’ve been having the hardest time lately, so I made an appointment with an ENT.
Continue reading “Hard to Swallow”…

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Hard to Swallow

Are you having a hard time swallowing? I've been having the hardest time lately, so I made an appointment with an ENT.
Continue reading “Hard to Swallow”…

Insurance and Meds

So it's been a while and I have missed You. We are going to catch up and talk about Insurance and Meds and the troubles I just experienced
Continue reading “Insurance and Meds”…

What did I get Myself Into

Working with the foundation has been an awesome experience. It allows us to help affect change, however so slight.
Continue reading “What did I get Myself Into”…

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Recent Episodes

19 Apr

Hard to Swallow

Are you having a hard time swallowing? I've been having the hardest time lately, so I made an appointment with an ENT.
Continue reading “Hard to Swallow”…
27 Jan

Insurance and Meds

So it's been a while and I have missed You. We are going to catch up and talk about Insurance and Meds and the troubles I just experienced
Continue reading “Insurance and Meds”…
16 Oct

What did I get Myself Into

Working with the foundation has been an awesome experience. It allows us to help affect change, however so slight.
Continue reading “What did I get Myself Into”…

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Chronic Illness Advocate; Podcast that discusses all aspects of living w/ Sjogren’s & maintaining an active lifestyle! Hosts Lupe & Brian‼️More Info👇🏼

Sjogren’s Strong
Wish I knew how to read the results…. unfortunat Wish I knew how to read the results…. unfortunately I have to wait for the appointment with my ENT. 

I will definitely be sharing the video and/or pictures. 

🦋Stay Sjogren’s Strong 🦋

#SjogrensStrong
#StrongerTogether
#LivingSjogrensStrong
#ShiningALightOnSjogrens 
#ThisIsSjogrens
#MightyTogether
#SjogrensSyndrome
#hardtimeswallowing 
#Esophagram
#ThroatXray
Nexium has been a lifesaver for me!! Five days on Nexium has been a lifesaver for me!! Five days on this stuff and I am able to swallow again. 

I’ve been pigging out since Saturday!! …get in my belly!! 

Weird, I had never heard of GERD or acid reflux before going to my ENT. I’ve never experienced heartburn either. 

We’ll see if that’s the issue though. Hopefully it’s as simple as taking Nexium every morning. 

I attached a picture of the capsule next to a dime for scale… regular size and mini. 
Both are pretty small. 

I had an esophageal X-ray today; I have to go back to my ENT for the results. 

To be continued…. 

What has been your experience with Nexium or any other acid reducer? 

🦋Stay Sjogren’s Strong 🦋

#SjogrensStrong
#StrongerTogether
#LivingSjogrensStrong
#ShiningALightOnSjogrens 
#ThisIsSjogrens
#MightyTogether
#SjogrensSyndrome
#Nexium #hardtimeswallowing
Are you having a hard time swallowing? I've been h Are you having a hard time swallowing? I've been having the hardest time lately, so I made an appointment with an ENT. Even though this journey is not over, I want to share what is going on.

Take a listen on your favorite podcast player or go to link in bio. 

🦋Stay Sjogren’s Strong 🦋

#SjogrensStrong
#StrongerTogether
#LivingSjogrensStrong
#ShiningALightOnSjogrens 
#ThisIsSjogrens
#MightyTogether
#TroubleSwallowing 
#Endoscopy
#Esophagram
#SjogrensSyndrome
#RheumatoidArthritis
#Autoimmune #ChronicIllness
#SjogrensFlare #SjogrenSyndrom
#SpoonieSupport #Sjogren #SpoonieProblems #Sjogrens #SjogiProblems #Sjogie #ChronicFatigue #Sjögren #Sjögrens #Spoonie #ChronicallyActive
When you can’t swallow solids; Squeezables 🦋 When you can’t swallow solids; Squeezables

🦋Stay Sjogren’s Strong 🦋

#SjogrensStrong
#StrongerTogether
#LivingSjogrensStrong
#ShiningALightOnSjogrens 
#ThisIsSjogrens
#MightyTogether
#SjogrensSyndrome
#RheumatoidArthritis
#Autoimmune #ChronicIllness
#SjogrensFlare #SjogrenSyndrom
#SpoonieSupport #Sjogren #SpoonieProblems #Sjogrens #SjogiProblems #Sjogie #ChronicFatigue #Sjögren #Sjögrens #Spoonie #ChronicallyActive
Has anyone had an endoscopy? I just did - it was Has anyone had an endoscopy? 

I just did - it was very unpleasant!! 

It’s visual examination of your esophagus (endoscopy). 
A thin, flexible lighted instrument (endoscope) is passed down your throat so that your doctor can see your esophagus.

I’ve had the hardest time swallowing lately! I choke on EVERYTHING, including water - can believe it!? 

To the point that I’ve stopped eating, only soups when I’m really hungry.  I’ve often thought of pureeing all my foods or eating baby food only. I’ve already lost 10 lbs, that part I like!! 

Brian has been very close to dialing 911 several times! 😱 

I’ve always had issues swallowing but never to this extreme.  It’s gotten 100x worse over the past several months - sipping water does not help! 

** Caption is too long… see comment below **
I’m MELTING!! 🫠 This heatwave is kicking my I’m MELTING!! 🫠 
This heatwave is kicking my butt! And the wind isn’t helping! 😡 

Don’t over do it today, Sjogies!! 

Stay cool! 😎 
Stay hydrated! 💦 
Stay healthy! 😷 
Use plenty of eye drops 💧 

🦋Stay Sjogren’s Strong 🦋

#SjogrensStrong
#StrongerTogether
#LivingSjogrensStrong
#ShiningALightOnSjogrens 
#ThisIsSjogrens
#MightyTogether
#SjogrensSyndrome
#RheumatoidArthritis
#Autoimmune #ChronicIllness 
#Hashimotos #Dryeyes
#SjogrenSyndrom
#SpoonieSupport #Sjogren #SpoonieProblems #Sjogrens #SjogiProblems #Sjogie 
#SpoonieLove #SpoonieLife #Heatwave #Hot #StayHydrated
#DrinkWater #ChronicFatigue #Sjögren #Sjögrens #Spoonie #ChronicallyActive
Be your own advocate! Me on the phone for over a Be your own advocate! 

Me on the phone for over an hour with Express Scripts wanting to know why my Plaquenil hasn’t been filled. 

For reference, two weeks ago, I posted asking if anyone was having issues filling their Plaquenil due to another shortage because my pharmacy told me that it was unavailable at the time… most of you weren’t having any issues, thank you for responding. 

So… I called Express Scripts, again, the rep was really nice but couldn’t tell me why my script had not been filled nor was she able to provide further explanation. 

I, politely, asked to speak to the pharmacist… she hesitated at first and after what seemed like forever on hold, she finally put me through while remaining on the line…. 

Well, apparently I was too specific with the “shape” and “manufacture” I wanted, so they filled the other scripts (5) and decided to ignore the script for the Plaquenil without attempting to contact me. 

Not only that, they returned the Plaquenil script in the mail, stating I didn’t have coverage. 🤦🏻‍♀️ 

What do you mean I don’t have coverage? …the other scripts have already been filled. 😡 

I can’t!! I just can’t!! 

I explained to the pharmacist that I have trouble swallowing due to Sjogren’s / dry mouth and that’s why I was very specific - oval not round and pills had to be coated.

The pharmacist understood and added a note to my chart so this sort of delay does not happen again. 

They had pills all along, both round and oval. Coated and uncoated. Name brand and generic. 

Maybe they don’t like patients being too specific with their needs/wants and patients just accept what they are told without question! 

❌ I am no longer that person! 

✅ Be your own advocate! 
✅ Don’t accept what you are told! 
✅ Ask for what you need!
✅ Don’t give up until you get it! 

➡️ Swipe right to see my note. ➡️

Takes me back to grade school when you write a note to a boy or girl…. 
Do you like me yes or no? 😂 

🦋Stay Sjogren’s Strong 🦋

#SjogrensStrong
#StrongerTogether
#LivingSjogrensStrong
#ShiningALightOnSjogrens 
#ThisIsSjogrens
#MightyTogether
#SjogrensSyndrome
#Autoimmune 
#SjogrenSyndrom
#Sjogren #Sjogrens #Sjogie 
#SpoonieLife
#ChronicallyActive
Happy Valentine’s Day, Sjogies! ❤️ 💕 ❤️ 💕 ❤️

❤️ Just a little Valentine
❤️ But very special too 
❤️ Because it’s made 
❤️ With special love 
❤️ Because it’s made for YOU! 

Words cannot express how I feel about this community! 

You’ve given me so much…. 

Thank you for being that little ray of sunshine on my cloudy days! 

For giving me the encouragement and support I needed to keep pressing on and moving forward on those difficult days! 

For sharing your experiences and all those wonderful tips and tricks with me, with all of us! 

But more importantly for being there for each other!! That’s what it’s all about… COMMUNITY! 

Thank you for being part of my journey! 

Hugs and kisses 😘 

 ❤️ Happy Valentine’s Day ❤️ 

🦋Stay Sjogren’s Strong 🦋

#HappyValentinesDay
#SjogrensStrong
#StrongerTogether
#LivingSjogrensStrong
#ShiningALightOnSjogrens 
#ThisIsSjogrens
#MightyTogether
#SjogrensSyndrome
#RheumatoidArthritis
#Autoimmune #ChronicIllness 
#Hashimotos #Dryeyes
#SjogrensFlare #SjogrenSyndrom
#SpoonieSupport #Sjogren #SpoonieProblems #Sjogrens #SjogiProblems #Sjogie #Podcast
#SpoonieLove #SpoonieLife
#ChronicFatigue #Sjögren #Sjögrens #Spoonie #ChronicallyActive
I did it… I walked 7.5 miles today - whoop!! Not I did it… I walked 7.5 miles today - whoop!! Not all at once… ⬇️

➡️ 2 - 20 minute breaks… 🤫 
➡️ 1 hr lunch 
➡️ 45 min walk across the street at the park before it got dark. 

Pushed myself a bit but I feel good and have been sleeping better since I started walking again! 

Start where you are. 
Use what you have. 
Do what you can. 

A little goes a long way to feeling better! 

🦋Stay Sjogren’s Strong 🦋

#SjogrensStrong
#StrongerTogether
#LivingSjogrensStrong
#ShiningALightOnSjogrens 
#ThisIsSjogrens
#MightyTogether
#SjogrensSyndrome
#RheumatoidArthritis
#Autoimmune #ChronicIllness 
#SjogrenSyndrom
#SpoonieSupport #Sjogren #SpoonieProblems #Sjogrens #SjogiProblems #Sjogie #Podcast #keepmoving
#SpoonieLove #SpoonieLife
#ChronicFatigue #Sjögren #Sjögrens #Spoonie #ChronicallyActive
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