Sjogren's Strong

Introduction

She’s Back

Lupe and Brian talk about Lupe’s recent travels to Mexico and how she managed her symptoms for a week of air travel and activities.

She’s Back

Lupe and Brian talk about Lupe’s recent travels to Mexico and how she managed her symptoms for a week of air travel and activities.

She’s Back

Lupe & Brian: [00:00:00] Welcome to another episode of Sjogren’s Strong.

Brian: [00:00:03] This is Brian.

Lupe: [00:00:05] And this is Lupe.

Brian: [00:00:06] She’s back.

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Lupe: [00:00:09] There is no place like home

Brian: [00:00:11] And this is your weekly podcast discussing how to live an active and healthy lifestyle despite a diagnosis of Sjogren’s.

Lupe: [00:00:17] Hey everyone, I missed you like crazy.

Brian: [00:00:22] And everybody, we need some feedback because she said last week’s episode sucked. She’s throwing me under the bus.

Lupe: [00:00:28] Well, it wasn’t that bad. I didn’t exactly use that word.

Brian: [00:00:32] She says to you.

Lupe: [00:00:34] That isn’t true. Actually, it wasn’t really cool episode.

Brian: [00:00:39] All right, all joking aside. Lupe, tell us a story.

Lupe: [00:00:44] I’m actually really excited to be back. Um, I was in Mexico for a total of seven days. It was a good trip. Um, I got to spend a lot of time with my parents and my sister. It was fun, but I’m glad to be back.

Brian: [00:01:00] So, we’ve joked about how long it takes you to pack for a trip. And, uh, I was actually a little worried that you put it off until the last day, for the most part.

But you were much more organized, in laying stuff out that you wanted to take and making determinations. Yeah, I want it, but I’m not going to take it and all of that.

But how did you do with your meds? Eye care? Lotion?

Lupe: [00:01:26] Well, it usually takes me about two months to pack, for a weekend. I’m exaggerating a little bit.

Brian: [00:01:32] Not really.

Lupe: [00:01:33] But, uh, you know, it’s kind of, the time kind of flew by and the date was here and it’s kind of snuck up on me. So, I actually packed, maybe I started packing the weekend before we left. And, um, I over-packed, as always.

But, um, I took the most important things, which were my meds, lotions, the new glasses, that I bought. Clothes that was wicking and that would protect you from the sun. I did take that because I knew we were going to walk a lot.

Brian: [00:02:08] When you got down and settled in, what was an average day like for you, with mom and dad and Sis in Mexico?

Lupe: [00:02:17] The average day was, we would get up in the morning and go buy freshly made tortillas, every morning from the locals. Um, they were always warm and the cheese over there is really yummy. I usually stay away from cheese, but I love cheese and I could not resist. So, every day I had cheese and tortillas.

And then we would go walk around, sightseeing, a little bit. And we would come home, and we had freshly made bread every evening with coffee. Because that’s what my parents liked doing, right? So, I’m like, yeah, I’m game.

Brian: [00:02:58] When in Rome.

Lupe: [00:02:59] You know, my diet, as you guys can tell, it wasn’t the best, but it was only going to be for seven days and why not, right? But I kind of did pay for it because out of seven days, guess how many times I pooped?

Brian: [00:03:15] Tell me.

Lupe: [00:03:16] One time.

Brian: [00:03:16] That’s no Bueno.

Lupe: [00:03:18] Yeah, and I didn’t drink too much water either, because I knew we would be doing a lot of walking. And I mean, what do you go to the potty over there?

Brian: [00:03:29] Yeah. And water, you guys would bring water in, correct?

Lupe: [00:03:32] Yes. We actually bought water. We didn’t drink it from the faucet. You know, my parents have a refrigerator over there, and I love ice, so I was going to fill the trays with water from the faucet and he’s like, no, no, no.

So you know, we had bottled water every day.

Brian: [00:03:49] Did you make ice cubes with the bottled water?

Lupe: [00:03:51] I did. Cause you know me.

Brian: [00:03:53] Got to have your ice.

Lupe: [00:03:54] I got to have it, if not, I really don’t drink water.

Brian: [00:03:57] So my big concern when you’re away, because anytime anyone’s on vacation, it’s hard to stick to a diet. You don’t have your local stores, the food you’re used to, refrigerator and prep surfaces and stoves and ovens and all of that good stuff.

So, I was concerned that, being semi off your diet and all the sightseeing and walking around, you guys were going to do that, you were going to flare, but?

Lupe: [00:04:21] I did not flair. I did; however, I did have inflammation. I still have sausage fingers. And I think it’s going to take me probably a couple of weeks to recover, if I’m being honest, and it was really hot. Every day it was between 85 and 90 degrees, really dry. I did feel my mouth was dry, my nostrils look dry, my everything was dry.

But I did keep up with my meds, so that helped.

Brian: [00:04:49] But no major hitting the wall and needing to sleep.

Lupe: [00:04:53] No. And you know what? I think that has a lot to do with, A, you’re on vacation. B, you don’t have to worry about work. I had no stress. I had no brain fog. I was just relaxed. So, I think that had a lot to do with it.

Brian: [00:05:08] You know, it’s funny you say that because typically when one’s on vacation in a foreign country, there’s a heightened sense of security. But you still found yourself relaxed.

Lupe: [00:05:17] Actually, okay, I’m glad you brought that up, because it is Mexico. You know, a lot of people say that bad things happen in Mexico. So, my senses are always heightened. So, I’m very vigilant. I’m always aware of my surroundings.

Um, I would never, I was always really close to my dad. And we wouldn’t go out at night, which kind of suck because sunrise was like at 7:30am and then sunset was like at 5 o’clock, so we had a really short day. Here in Orange County, um, Pacific Standard Time. it’s two hours ahead, over there, so yeah. So, it got dark on us.

Brian: [00:05:59] So you took a couple of things with you to make yourself more comfortable. So, let’s talk about those. You bought one of those travel necks pillows. Did you use it?

Lupe: [00:06:09] Negative. I didn’t use my neck pillow because I put it in my carryon bag, but then I stowed it away. And I didn’t keep it in my backpack, which was where I intended to keep it. But anyways, I didn’t use it. I’m bummed.

Brian: [00:06:24] And your Ziena glasses?

Lupe: [00:06:27] Okay. So Ziena glasses work really awesome. I wore them in the airplane. You know, cause the little overhead vent, um, it’s kind of blows right on your face. So, Ms. Susan Barajas, she said that she put in eyedrops in each eye and then put on her glasses, which really helped.

So, I did the same thing.

And the glasses really weren’t worked. I just feel moisture in my eyes, instantly. And I know that they’re working because the lenses get foggy. And that shouldn’t really happen, but I didn’t do the anti-fog, so I’m going to send them back to get that done.

And on top of that, my prescription was a little bit too strong, so I didn’t wear the glasses as often as I wanted to. But I mean, I did wear them, and they rocked guys, I recommend them.

Brian: [00:07:22] And we’re going to talk more about those in a future episode with ah, Ziena. I’m glad they worked excessively and fogged up because at least you know, if you need moisture, you’re not going to read or watch anything. You could at least put them on and feel some relief.

Lupe: [00:07:37] But it’s instant relief. It creates this (sucking sound). It just really works.

Brian: [00:07:43] Creates a barrier.

Lupe: [00:07:44] Yeah, it’s instant relief.

Brian: [00:07:49] Which is very, very cool. Now w when you send it back, are you going to get the prescription adjusted, as well?

Lupe: [00:07:54] Actually, I called the eye doctor today, and I’m going tomorrow, during lunch, to get my prescription adjusted. Because when I got him, because I have Progressive’s, I remember the optometrist, she said, Oh, you know, because they’re progressive, I’m going to make him a little bit stronger. And I’m like, ah, okay. I didn’t say anything.

But they were way too strong. And they give me a little bit of a headache. Everything is a little bit distorted because I’m trying to concentrate on not getting dizzy, if that makes sense. So, I’m sending them back, but all in all, they work, they rock. And, uh, when I get my prescription, I just did, you know, I’ll talk more about it.

Definitely. And we’re going to do that with Ziena in the studio, which we’re excited about, learning more about what they’re doing to help those of us with dry eyes.

I also packed my eyedrops, my Restasis. Prescription eyedrops. And I used those religiously, in the morning and in the evening, before bedtime. But I also took over the counter eyedrops and I use those every day. And even though it was dry, I mean, of course I felt dry, but I wasn’t miserable.

Brian: [00:09:01] Which is awesome.

Because I prepared it worried me that you were going to. Go through all of this and the ride to the airport and the flight down and ride to hometown and then be miserable or need a couple of days to rest and miss out on the activities with your family. But all in all, it sounded like it was a very positive trip. Totally was with seven days too long to be away from me. Absolutely. One hour’s too long to be away from you. Why are you flipping me off? You’re so funny. And I think one of the funniest things about her returning home last night, rat dog was a little skittish, was like, who is this? You know? That made me a little bit sad because I expected a different reaction from her because she is just. She loves me. I’m her favorite girl in the whole wide world. And I expected more of, you know, dancing around how she does that circle and Tay wagging and, and she didn’t do none of that. She was like, who are you? She kind of got used to me not being there, and maybe she thought I wasn’t going to return, which made me sad. And you know, she just got used to not having Allie around. And then mom disappears for a week and she bonded with me. She never falls asleep in my lap. She’ll jump up in my lap as long as I’d pet her. The second I stopped petting her, she’s gone. And she got to the point to where she would hang out with me. Cause you weren’t there. Well that was qualities you bonded. But I’m taking her back. Oh, she’s already, she’s already thrown me to the curb. Mama’s home. So, to wrap this up, I planned and prepared and I didn’t overthink, and I try not to stress, and I didn’t think about work and I had a good time despite Sjogren’s. Well then, I think in your planning and prep, you really made sure that you had everything you needed to manage your Sjogren’s, and you religiously took your meds and used your eyedrops and. I think the fact that you were a little more relaxed this trip than you normal, that you know its old hat for you. And when we crossed the border into the USA, I guess I was a little bit stressed about being over there, right? Because as soon as I crossed the border, my body just kind of relaxed and I’m like, okay, I can, I can make it home from here. You know? There’s no place like home.

Definitely not next to my boo.

Until next time. Sip constantly and stay hydrated.

Links

Sjogren’s Syndrom Foundation “Spouses & Partners”
Call 1 (301) 530-4420 Ext. 203 or send an email to ssf@sjogrens.org
Should soon be listed – https://www.sjogrens.org/home/get-connected/support-groups/specialsupportgroups

Chronically Active MeetUp https://www.meetup.com/Chronically-Active/
Chronically Active on Sjogren’s Strong https://sjogrensstrong.com/chronically-active/

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