Sjogren's Strong

Introduction

New Year, New Goals, New Show

2020, This New Year, allows for a reset on our goals, personal and for the show. This year brings some big news for Sjogren’s Strong and a new show in a different direction.

New Year, New Goals, New Show

2020, This New Year, allows for a reset on our goals, personal and for the show.
This year brings some big news for Sjogren’s Strong and a new show in a different direction.

New Year New Goals New Show

Lupe & Brian: [00:00:00] Welcome to another episode of Sjogren’s Strong.

[00:00:04] Brian: [00:00:04] This is Brian.

[00:00:05] Lupe: [00:00:05] And this isLupe.

[00:00:06] Brian: [00:00:06] And this is your weekly podcast, discussing how to live an active and healthy lifestyle despite a diagnosis of Sjogren’s.

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[00:00:12] Lupe & Brian: [00:00:12] We want to start off by saying Happy New Year to everyone. 

[00:00:18] Brian: [00:00:18] 2020 can you believe it?

[00:00:21] Lupe: [00:00:21] We made it.

[00:00:22] Brian: [00:00:22] So far.

[00:00:24] Lupe: [00:00:24] Only a few days in but we’re good.

[00:00:27] Brian: [00:00:27] That we are. So, uh, thank you all for hanging in there with us through our two week hiatus from producing an episode. We greatly appreciate it. Lupe and I did some serious resting. We went out and had some fun. We got a new dog.

[00:00:45] Lupe: [00:00:45] And a couple of hikes in.

[00:00:47] Brian: [00:00:47] We did get a couple of hikes in. So, it was fruitful. And we utilize some of this time to do some brainstorming and some thinking about the direction for Sjogren’s Strong and what we want to do with not only it, but upcoming projects.

[00:01:07] Lupe: [00:01:07] Well, we decided that a Sjogren’s Strong, instead of being a weekly show, it’s going to be a bimonthly show.

[00:01:16] Brian: [00:01:16] Every other week.

[00:01:16] Lupe: [00:01:16] I was going to say a bi-weekly show, but yes,

[00:01:17] bimontly.

[00:01:18] Brian: [00:01:18] Why did we decide that?

[00:01:21] Lupe: [00:01:21] Okay, so ever since we’ve been doing the podcast, I find that Sjogren’s is always on my mind. The only thing on my mind, because I’m thinking ahead for upcoming episodes. And it was just consuming me and it was messing with my mind.

[00:01:42] I mean, it’s the only thing that I think about constantly. And yes, it was always on my mind because I had to take my meds, but  iit was just a little bit too much for me. So I went up to Brian and I said, hey, is it cool with you if we do every other week.

[00:01:59] Brian: [00:01:59] I responded by, as long as we’re utilizing our time in a productive manner, pushing the goal forward, I think that would be okay, and let me, let me take it back a notch.

[00:02:12] With show prep, show planning, all of that, we also stopped being as active as we were. With Sjogren’s Strong, you know, being a show about living an active, healthy lifestyle. We weren’t being as active because we were in the studio, or we were brainstorming upcoming episodes or spending time emailing guests and all of that.

[00:02:38] So Lupe, why don’t you tell him, what did we decide to do.

[00:02:43] Lupe: [00:02:43] Again, we decided every other week would, we would do Sjogren’s Strong. BUt we also decided because we are not being as active and to me that’s important, because I feel like I’m kind of going backwards. Um, I used to be really active and now I’m not so active and I feel like my body is shutting down.

[00:03:06] For lack of a better word. That’s the one that I’m using. Um, but I feel like it’s shutting down and I just feel like I need to be more active. I need to start walking more. I used to go to the gym a couple of times a week, and I’m not doing that anymore. And I just feel like my body is shutting down, that it’s just consuming my mind.

[00:03:26] So what we decided is for this year, we’re going to actually launch another podcast.

[00:03:33] Brian: [00:03:33] Which sounds counter intuitive. We want more time to be active, so we’re cutting back on Sjogren’s Strong, but we’re going to launch another show. But let’s discuss the reasons why. 

[00:03:46] # 1, we don’t need to be in the studio to record. We can record from the field. The field is going to be while we’re hiking, while we’re walking, when we’re out doing things. And yes, we’ll do some studio work as well.

[00:03:57] However, the new show is going to focus on, pushing our bodies and getting back to the activity level that we once were. You know, for those of you who’ve been around a while, you know, Lupe and I met training to ride a hundred mile bike ride.

[00:04:13] We’ve hiked a couple of the local peaks here in Southern California. We, used to be so much more active than we were. So we took 2020 and neither of us are big into new year’s resolutions, but we are both big into goal setting. So let’s, let’s do that and talk about the goals we set for ourselves, now that you’re aware of the goal that we’ve set for Sjogren’s Strong of producing every other week.

[00:04:46] Lupe: [00:04:46] Um, so for me, my goals for 2020, I’ve always wanted to complete a half marathon. And I don’t know when in 2020, it could be the last week of 2020, but this year I will complete my half marathon. And I also, because I love hiking, I love the outdoors. I also wanna do six peaks this year, and that’s six of the highest peaks in Southern California.

[00:05:13] Brian: [00:05:13] And everyone knows how much I love running. But Lupe and I are in it together. I tell her all the time, I’m team loopy, so I’m going to accomplish a half marathon as well.

[00:05:25] With that, having been said, my first goal is to drop some weight. I’ve put it on and I want to shave “gibberish” that many pounds off, um.

[00:05:35] Lupe: [00:05:35] How many was that?

[00:05:36] Brian: [00:05:36] “Gibberish” many. And my second big goal is not to die this year, trying to keep up with my wife.

[00:05:45] Lupe: [00:05:45] Oh, come on now, it’s not going to be so bad. So yes, those are only two of several goals that I set to accomplish this year. For me, they’re more athletic goals because I feel like I got a little bit lazy. Um, and so I want to go back to where I was or try to be, because again, I, I feel like my body is shutting down.So,those are my goals.

[00:06:13] Brian: [00:06:13] So stay tuned. We’re not dropping the name of the new show yet, and we do intend on launching it next week. So when you’re hearing this, it will be the week after. And for those of you who want to challenge themselves, want to push themselves, want to learn some tips and tricks into the physical part of being active, while having a chronic illness, um, this might just be the show for you.

[00:06:44] And we challenge you all to set some goals. And everybody’s Sjogren’s affects them differently. And we’ve spoken to people that getting out of bed on a daily basis and getting themselves together for work and going to work and coming home is, they’re done. And we even challenge you if that’s you. We even challenge you, walk two laps around your car before you go into the house at the end of the day and build upon that. But push yourself. And if that’s all you can do, that’s okay. Just push yourselves to go a little bit farther, a little bit faster, and see how you feel.

[00:07:31] And by all means, please start off by cleaning up the diet. If you’re going to use your body, you need to fuel your body. It was good.

[00:07:40] Lupe: [00:07:40] Okay. I like it. You weren’t even thinking about it. You not even trying.

[00:07:44] Brian: [00:07:44] Spitting gold.

[00:07:45] Lupe: [00:07:45] Okay. So for me, ever since I had my molar extracted, I feel like I started feeling really good. And so what did I start doing? Oh, I’m, I’m feeling really good. I love sugar. I love ice cream. So I started eating ice cream. I started giving into my cravings of ice cream and junk food, and I kind of been regressing, ah, in the way that I feel. And over the weekend I feel like I hit rock bottom and I’ve been keeping up with my meds.

[00:08:16] But for me it was just my diet. And for the last. I’m going to say two days. I cut out sugar 100% and just two days not having any sugar or not consuming any junk food, it makes a big difference for me. And, but you know, we’re human. We go back to to our old ways, but I just, I don’t want to do that anymore. So being healthy this year, that’s my number one goal.

[00:08:45] Brian: [00:08:45] With that having been said, we again challenge you to set a goal, and I always tell people that a goal, not written down, not looked at on occasion and not work towards accomplishing, is a dream. So step one, think of something you want to accomplish and write it down and write it down in a place to where you see it regularly.

[00:09:12] And work towards achieving it. And again, even if it’s two laps around your car before you go into the house, at the end of the day.fF it’s, I need to go to the kitchen, but I’m going to walk to the kitchen, walk back to the chair, walk to the kitchen, get what I need, walk back to the chair. If that’s all you can do, rock on with your bad self and start doing it and build yourself up to two extra trips, three extra trips. But together we can do it.

[00:09:40] And if you’re non-ambulatory, you can maybe do arm curls. You may be able to do leg raises while you’re sitting into a chair. There is something that the majority of us can do. Now, I’m not trying to upset anybody who feels that they can’t or has been told not to do certain things.

[00:10:01] That doesn’t mean you can’t do everything. If all you can do is meditate, start a meditation ritual. If that’s it, do it for you. Do it for your peace of mind. Do it to accomplish that goal. Because when we set goals and we achieve goals, we feel better about ourselves and we’re more willing to set a more aggressive goal in the future. I hope that makes sense.

[00:10:26] Lupe: [00:10:26] I’m a little confused, but that’s okay. No, it does. It totally does -set goals. You know what I’m doing for me, I actually went to TJ Max, because I’m a little bit fruga I didn’t want to spend too much, like on a journal.

[00:10:40] Actually, Brian’s giving me this look because I love buying journals, because I plan to write and then they’re all blank pages, but what I did buy was a weekly planner for 2020 .And I know that there’s apps and there’s Excel sheets on the computer, but I guess I’m kind of old school and I like having something in front of me that I could carry with me. So I bought this pretty pink planner. And it’s a weekly planner, and I started writing.

[00:11:13] Uh, I weigh myself in the morning and I want to write how I feel and I want to write what I ate. And I’m going to write what I eat throughout the day because that’s going to keep me accountable. And if I start feeling crappy, I’m going to go back and I’m going to see, Oh, well that’s because I had a gallon of ice cream over the weekend, you know?

[00:11:35] And that’s what I did over the weekend. Over the over the past week, I actually did have a gallon of ice cream and it affected me in a really bad way. So, so that’s what  I bought a journal and I’m just going to start writing everything down.

[00:11:49] Brian: [00:11:49] And for me, both of us have Fitbit’s, but I’m going to use the Fitbit app to log my activity, my steps, my food.

[00:11:57] For those of you who follow me, I think I posted on my personal page, I probably the best night’s sleep I’ve had in a long time, a few nights ago, and the Fitbit tracks that if you’re wearing it while you’re sleeping. So I’m going to rely and lean on technology. Um, I do enjoy writing and I do journal other things in other places for other reasons.

[00:12:17] However, fitness. I think I’m going to rely on the tech.

[00:12:21]Lupe: [00:12:21] You know, from for me, calories are not as important as eating healthy. Obviously, if you eat healthy, you’re not going to consume a lot of calories, right? Because a gallon of ice cream is a million calories, right? If I’m only having veggies,that doesn’t take up too many calories.

[00:12:39] So I am using my Fitbit as well, but for me, I like flipping through pages and actually seening it. So that’s what I prefer.

[00:12:48] Brian: [00:12:48] So I’m sure you can tell we’re excited about this new project and we would love for you to join us. When we launch the new show. We still will be producing every other week and episode of Sjogren strong.

[00:13:01] We have a couple of cool episodes coming up. There’s actually a lawyer we’re going to speak to who focuses on helping people with chronic illness get the benefits, they may have been denied, that’s one.

[00:13:17]Lupe: [00:13:17] And the other one,  we’re going to have Ms. Shelby Colburn back on the show, she’s an L and D nurse, labor and delivery nurse, and she’s gonna be talking about childbirth and Sjogren’s.

[00:13:31] Brian: [00:13:31] Yup. Not only is she an L and D nurse, she is also a doula, and she’s working on her masters in nursing right now, but she’s going to peel herself away from the books for a little bit. Um, I’m not forcing her or holding anything over her head, I promise.

[00:13:46] Lupe: [00:13:46] Are you sure she’s your kid?

[00:13:49]Brian: [00:13:49] Some days I’m not, but my daughter is definitely smarter than I.

[00:13:53] So yeah, we’ve got a few cool episodes, in the works and we’re excited to get them out and shared with you. And Lupe’s waving me off.

[00:14:03] Lupe: [00:14:03] Okay, so the last episode, um, we asked if anybody had any ideas and we actually had several people send us emails. So we’re working on putting those episodes together, as well.

[00:14:15] Brian: [00:14:15] And we thank you very much for interacting with us and letting us know what it is you want to hear.

[00:14:19] Lupe: [00:14:19] Yes, we really, really appreciate it. You know who you are. So we’re excited about that. You know, even though we’ll only be doing every other week, we’re still going to be active on social media, so if you have any questions or whatever, please feel free to reach out. We’re definitely available

[00:14:36] Brian: [00:14:36] Yup. And the new show’s not going to have a Facebook presence. It’s going to be primarily Instagram and maybe a little bit of TikTok.

[00:14:45] Lupe: [00:14:45] Oh geez. You know what? He’s been trying to get me to do live videos and I don’t know. I don’t know how I feel about that.  Cause then, I’m out there forever, right.

[00:14:54] Brian: [00:14:54] You’re out there forever already.

[00:14:55] Lupe: [00:14:55] What if I’m doing something silly? You know?

[00:14:58] Brian: [00:14:58] You know, silly gets the love.

[00:15:00] Lupe: [00:15:00] Sometimes I say silly things.

[00:15:03] Brian: [00:15:03] You know what, there’s a picture of her and I want to say she shared it. I’m not sure if it was on her personal profiles or not. We wanted to go on this hike and it was, I’m supposed to be pretty cool. Trail on the map all is well. We were going to veer off the trail a little bit and do a little peak, come back to the trail and basically do a big loop back to where we started.

[00:15:28] Well, about the last third of this trail was not maintained, but it was still on the map and, you know that first, I don’t know, half mile, you know, should have warned us, but we just kept pushing and kept pushin. And it got to the point we had to scramble down rocks and take packs off and hold nine yards, but at one part of this hike Lupe just lays down, her is off she is on her back, tried to take a nap hat over her face. We’ll have to find that picture.

[00:15:59] Lupe: [00:15:59] Um, I think I did post that and it says something like, uh, I tried taking over the world but I got tired. And you know what though, but I’ll repost it cause it’s cool.

[00:16:12] Brian: [00:16:12] It’s a great picture. She was a little mad at me. But hey, how was I supposed to know the trail was no longer a trail.

[00:16:18]Lupe: [00:16:18] But it was fun. And I mean, I always enjoy being out there, but, uh, I mean, the trail kind of disappeared on us and we didn’t know which way to go.

[00:16:28] Brian: [00:16:28] And at that point, to turn around and go back was like nine miles, to push forward was like three. So we broke bush for about three miles. We did finally meet up with a trail that led back, not to where we wanted to, but deeper into the park.

[00:16:43] And remember we ran into that baby rattlesnake.

[00:16:46] Lupe: [00:16:46] We were going down a hill and it was rocky and my legs were all shaky.

[00:16:52]Brian: [00:16:52] And she’s a little scared.

[00:16:53] Lupe: [00:16:53] Oh my God. But we had a good time. We made it.

[00:16:57]Brian: [00:16:57] Yup.

[00:16:57] Lupe: [00:16:57] Those are the adventures that I love.

[00:16:59] Brian: [00:16:59] And those are the adventures we’re going to get into and share. And, um, hopefully drag a few people along with us.

[00:17:06] Yeah, we’ll share our experience, with you guys. But we’ll also bring, obviously, value to the show.

[00:17:13] All right,  I think I’ve covered everything on the list I wanted, wait a minute,  yes, not die keeping up with my wife. I did cover that.

[00:17:21] Lupe: [00:17:21] Oh, that’s the most important thing for you, huh?

[00:17:22] Brian: [00:17:22] For me, definitely.

[00:17:24] Lupe: [00:17:24] So let’s just sum it up, my personal goals are to complete a half marathon and Susan Barajas, I might be reaching out to you because I’m going to need a few tricks, a little bit of inspiration. Because 2020 is my year to complete a half marathon and my six peaks, on top of a few other goals.

[00:17:45] Brian: [00:17:45] And if you’re going to set some fitness goals, share them in our Facebook group and let’s motivate each other to share them and complete them. We can lean on each other there, and buddy check each other there to make sure we’re working towards completing them.

[00:18:03] Lupe: [00:18:03] I’m connected with a lot of people on Fitbit, so again, my email addresses Lupe, L U P E @sjogrensstrong.com and we could get connected on Fitbit.

[00:18:15] And also, very important, I want you guys to know that don’t feel like we are abandoning you because we are not doing that.

[00:18:24] Again, it’s me. Um, it was affecting my mental health, uh, you know, doing a show  every week. And so, um, I’m doing it for me.

[00:18:35] Brian: [00:18:35] So we’re still gonna do a show every week, but some of it’s going to get a little aggro about, uh, exercising.

[00:18:42] Lupe: [00:18:42] You know what though? That’s what I want to do. That’s, that’s kind of my passion. So, I want to get into doing what I love, and that’s why we’re going to do this every other week.

[00:18:52]Brian: [00:18:52] And the show is going to push us to accomplish our goals and hold us accountable.

[00:18:56] Lupe: [00:18:56] Yeah.

[00:18:57] Brian: [00:18:57] In a very public manner.

[00:18:58]Lupe: [00:18:58] And it’s going to be positive too. It’s going to be a positive. And you know what? It’s not always going to be easy. I’m aware of that. You know, I’m going to have bad days. Brian’s going to have bad day.  But this is going to keep us accountable.

[00:19:11] And before I forget, I want to wish, Megan, a HAPPY BIRTHDAY. Hi birthday girl! Hope you’re having a good day.

[00:19:21] Brian: [00:19:21] Thanks for checking out this episode and please write this number down. Area code (714) 643-2500, Sjogren Strong is at extension 215. That is a number to where you can call in and leave questions and or comments via voicemail. If you leave a message, it may be played in an upcoming episode. That number again is (714) 643-2500 and, Sjogren’s Strong extension is 215.

[00:20:00]Lupe: [00:20:00] Until next time, sip constantly and stay hydrated.

Links

Sjogren’s Syndrom Foundation “Spouses & Partners”
Call 1 (301) 530-4420 Ext. 203 or send an email to ssf@sjogrens.org
Should soon be listed – https://www.sjogrens.org/home/get-connected/support-groups/specialsupportgroups

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