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Sjogren's Strong
Irvine, CA

Email Lupe

lupe@sjogrensstrong.com

Email Brian

brian@sjogrensstrong.com

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sjogrens_strong

Podcast that discusses all aspects of living w/ Sjogren’s & maintaining an active & healthy lifestyle!🌸
🎙Hosts:🙍🏻‍♀️Lupe &🙎🏼‍♂️Brian 🎧
‼️More Info👇🏼

Congratulations to our very own, @janetechurch on

Congratulations to our very own, @janetechurch on her new position with the foundation as President and CEO. ❤️

#Repost @sjogrensfoundation
・・・
The Sjögren’s Foundation is proud to announce Janet E. Church as the organization’s new President and Chief Executive Officer.

Church will succeed Steven Taylor, who will be leaving after serving nearly 18 years as President and CEO to join the Arthritis Foundation as Executive Vice President.

"I’m honored to be entrusted with this important leadership position. The Sjögren’s Foundation has a rich history as a trusted organization advocating for Sjögren's patients. I like to take on new challenges and have no trepidation moving boldly into the future of the Sjögren’s Foundation. I look forward to joining the dedicated staff and working with our members and volunteers as we continue to move towards our shared vision of creating a community where patients, healthcare professionals and researchers come together to conquer the complexities of Sjögren's," said Church.

Please join us in welcoming Janet Church as the organization’s new President and Chief Executive Officer. Learn more about this announcement by clicking the link in our bio.
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#Sjögrens #SjögrensFoundation #ThisIsSjögrens #ConqueringTheComplexitiesOfSjögrens #StrongerTogether #ConqueringSjögrens #WeAreAllInThisTogether #PatientsSharingWithPatients #SjögrensAwareness

Went to Costco today to buy a garbage disposal and

Went to Costco today to buy a garbage disposal and a fire extinguisher, bought everything except what was on the “list”! 😂

❓Why use a humidifier?

✅ Puts Moisture In the Air
✅ Relieves Dryness
✅ Breathe Easier
✅ Sleep Better

😎 This one is cool!! ❓Why?

🌫Visible mist, works instantly
🤫Whisper Quiet, no noisy fan
✅ WARM and COOl mist
✅ Dual tanks, 2 gal capacity
✅ 12 - 120 hour runtime, based on setting
✅ Programable Digital Mist
✅ Auto- Off Timer
✅ Warm Mist Kills up to 99.99% of Bacteria 🦠

💵 I paid $79.99, which I thought was a bit pricey but
I LOVE IT!! ❤️

🤦🏻‍♀️ P.S. Brian is putting together a bed frame 🛏

#Humidifier
#HoMedics
#SjogrensStrong
#StrongerTogether
#LivingSjogrensStrong
#ShiningALightOnSjogrens
#ThisIsSjogrens
#MightyTogether
#SjogrensSyndrome
#RheumatoidArthritis
#WomenHelpingWomen
#Autoimmune #ChronicIllness
#InvisibleIllness
#inflammation #flare #SjogrensFlare #SjogrenSyndrom #Sjogi
#SpoonieSupport #Sjogren #SpoonieProblems #Sjogrens #SjogiProblems
#SpoonieLove #SpoonieLife
#Sjögren #Sjögrens #Spoonie
#ChronicallyActive

Happy Friday Sjogies! 🙌🏼 Several of you ha

Happy Friday Sjogies! 🙌🏼

Several of you have asked if I’ve gotten the Covid-19 vaccine?🤔

I have not! To be honest, I’m afraid to get it and I’m also afraid of not getting it. I think there’s not enough data out there for people with autoimmunes - so I think I’ll wait!

I’ve gotten the flu shot 2-3 times in my my life and it’s knocked me on my a$$ every time! So, yes, I’m scared.

I try to stay away from people as much as possible. I wear my N95 when I’m out and about and use hand sanitizer religiously.

Have you gotten it?
How did it go?

#SjogrensStrong
#StrongerTogether
#LivingSjogrensStrong
#ShiningALightOnSjogrens
#ThisIsSjogrens
#MightyTogether
#SjogrensSyndrome
#RheumatoidArthritis
#WomenHelpingWomen
#Autoimmune #ChronicIllness
#InvisibleIllness #Hashimotos
#inflammation #flare #SjogrensFlare #SjogrenSyndrom #Sjogi
#SpoonieSupport #Sjogren #SpoonieProblems #Sjogrens #SjogiProblems
#SpoonieLove #SpoonieLife
#ChronicFatigue #Sjögren #Sjögrens #Spoonie
#ChronicallyActive

2021 already started crazy! But I woke up feeli

2021 already started crazy!

But I woke up feeling like a million bucks - FINALLY! 😊

It took me hot minute to recover from this last flare. I slept A LOT, ate CLEAN and took my MEDS, as prescribed!
I don’t always!!🤦🏻‍♀️

It’s so easy to revert back to old habits that you know will hurt you in the long run... I’m gonna do my best to stay on track.

If I’m being honest, this last flare has been the worst - EVER! And it lasted a long time... it really scared me! I never want to feel that way again... eventually I’ll have another flare, I know!

The hardest thing for me to deal with is the BRAIN FOG - especially at work!!

This year I plan on livin’ my best life and do everything I can to heal my MIND, BODY and SOUL!
Most importantly try to avoid another flare!

🚫 No Sugar 🍭
🚫 No Junk Food 🍰
🚫 No Processed Foods 🍟
🚫 Dairy 🥛 🧀
🚫 No Alcohol 🍷

✅ Meds 💊
✅ Sleep / Rest 😴
✅ Fresh Air/Sun 🏞 🌞
✅ Keep Moving 🚶🏻‍♀️🚴🏻‍♀️ 🥾
✅ Read a few books 📚
✅ Photo Walks
✅ Try Yoga 🧘🏻‍♀️

A special thanks to all my followers for always being there for each other and encouraging each other to keep moving forward and never give up!

Here’s to 2021!! 🥂

#HappyNewYear2021
#SjogrensStrong
#StrongerTogether
#LivingSjogrensStrong
#ShiningALightOnSjogrens
#ThisIsSjogrens
#MightyTogether
#SjogrensSyndrome
#RheumatoidArthritis
#WomenHelpingWomen
#Autoimmune #ChronicIllness
#InvisibleIllness #Hashimotos
#inflammation #flare #SjogrensFlare #SjogrenSyndrom #Sjogi
#SpoonieSupport #Sjogren #Sjogrens #SjogiProblems
#SpoonieLove #SpoonieLife
#ChronicFatigue #Sjögren #Sjögrens #Spoonie
#ChronicallyActive

I passed the hardest moments home, alone with my w

I passed the hardest moments home, alone with my wonderful hubby, while everyone believed I was fine.

How many of us isolate ourselves like wounded animals when we are in flare, pain or out of spoons?

Update: I’m still recovering from this flare... it knocked me on my a$$ - HARD! And has been the worse one yet! I’ve slept for 4 days straight... only getting up to eat, take my meds and go peeps.

I still have a lot of inflammation but am no longer in pain, just tired and sore! My arms are heavy and my legs feel like jelly when I walk. To quote a friend, my face looks like a marshmallow - soft and pudgy.

I am so thankful for my husband who takes such great care of me on my “down” days. Life with Sjogren’s would be so much harder without him.

I am also thankful for this community. A big thank you and gentle hugs to everyone who has reached out to check on me. I appreciate all your texts, vm’s and videos!

Hoping to be fully recovered by New Years so I can bring in the year feeling STRONG, asleep but strong!

Much love! ❤️

#SjogrensStrong
#StrongerTogether
#LivingSjogrensStrong
#ShiningALightOnSjogrens
#ThisIsSjogrens
#MightyTogether
#SjogrensSyndrome
#RheumatoidArthritis
#WomenHelpingWomen
#Autoimmune #ChronicIllness
#InvisibleIllness #Hashimotos
#inflammation #flare #SjogrensFlare #SjogrenSyndrom #Sjogi
#SpoonieSupport #Sjogren #SpoonieProblems #Sjogrens #SjogiProblems
#SpoonieLove #SpoonieLife
#ChronicFatigue #Sjögren #Sjögrens #Spoonie
#ChronicallyActive

I must have been naughty this year cause all I got

I must have been naughty this year cause all I got for Christmas was “sausage” fingers! Look how deformed my fingers are from all the inflammation!

Having a major flare; body aches, arms feel like cinder blocks, debilitating fatigue and the brain fog is kicking in.

I have whole body inflammation... it’s like I put on 20lbs overnight!

Got winded from walking to the fridge for a glass of water.

🛑 ✋🏼 Stop! No hugs please... they hurt so much!

And then the depression kicks in!! ...need I say more!? Ugh!

What can you do....!? ...ride it out!

What helps you during a flare and what do you do to reduce inflammation?

#SjogrensStrong
#StrongerTogether
#LivingSjogrensStrong
#ShiningALightOnSjogrens
#ThisIsSjogrens
#MightyTogether
#SjogrensSyndrome
#RheumatoidArthritis
#WomenHelpingWomen
#Autoimmune #ChronicIllness
#InvisibleIllness #Hashimotos
#inflammation #SjogrenSyndrom #Sjogi
#SpoonieSupport #Sjogren #SpoonieProblems #Sjogrens #SjogiProblems
#SpoonieLove #SpoonieLife
#ChronicFatigue #Sjögren #Sjögrens #Spoonie
#ChronicallyActive

Merry Christmas!! 🎄 Wishing you health, fun, l

Merry Christmas!! 🎄
Wishing you health, fun, laughter and happiness that stays with you today and for the year to come!

❤️ Lupe & Brian ❤️

#MerryChristmas
#HappyHolidays
#FelizNavidad
#SjogrensStrong
#StrongerTogether
#LivingSjogrensStrong
#ShiningALightOnSjogrens
#ThisIsSjogrens
#MightyTogether
#SjogrensSyndrome
#RheumatoidArthritis
#WomenHelpingWomen
#Autoimmune #ChronicIllness
#InvisibleIllness #Hashimotos #SjogrenSyndrom #Sjogi
#SpoonieSupport #Sjogren #SpoonieProblems #Sjogrens #SjogiProblems
#SpoonieLove #SpoonieLife
#ChronicFatigue #Sjögren #Sjögrens #Spoonie
#ChronicallyActive

Happy Friday Sjogie’s! This one is too good not

Happy Friday Sjogie’s!
This one is too good not to share! Like me, I know many can relate! #NeedMoreSleep 😴

#SjogrensStrong
#StrongerTogether
#LivingSjogrensStrong
#ShiningALightOnSjogrens
#ThisIsSjogrens
#MightyTogether
#SjogrensSyndrome
#RheumatoidArthritis
#WomenHelpingWomen
#Autoimmune #ChronicIllness
#InvisibleIllness #Hashimotos #SjogrenSyndrom #Sjogi
#SpoonieSupport #Sjogren #SpoonieProblems #Sjogrens #SjogiProblems
#SpoonieLove #SpoonieLife
#ChronicFatigue #Sjögren #Sjögrens #Spoonie
#ChronicallyActive

Out and about trying to find different color vests

Out and about trying to find different color vests cause my back been aching due to the temperature cooling down.... vests keep my core warm and pain free!

So I went to the Columbia Outlet at The Pike... they were closed but at least I got this cool pic of me sitting in a giant chair... Citadel bound!
Any day outside is a good day.

Are your aches and pains temperature related? What helps you stay warm?

#SjogrensStrong
#StrongerTogether
#LivingSjogrensStrong
#ShiningALightOnSjogrens
#ThisIsSjogrens
#MightyTogether
#SjogrensSyndrome
#RheumatoidArthritis
#WomenHelpingWomen
#Autoimmune #ChronicIllness
#InvisibleIllness #Hashimotos #SjogrenSyndrom #Sjogi
#SpoonieSupport #Sjogren #SpoonieProblems #Sjogrens #SjogiProblems
#SpoonieLove #SpoonieLife
#ChronicFatigue #Sjögren #Sjögrens #Spoonie
#ChronicallyActive

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